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daily 0.75 2025-03-28 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/cdbaaa4c-e972-4f19-bea6-2ce96527fcf6/IMG_7333.PNG https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/a4f285dc-6fa6-4633-a92c-366170510b0d/IMG_7327.jpeg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/fa2f9b2e-843a-4a83-a4d3-5a880afdbe22/IMG_7322.jpeg https://www.ptlshope.org/stories-wren daily 0.75 2024-08-27 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/6c93c414-f969-4571-a860-c7cf87a5f25c/3182E9AA-8926-4137-85EC-2303612C6582.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/672a13a3-3b5d-4cca-9a0e-50daa799f0f5/9317D4D4-34E9-497A-807D-556ADC3F94AC.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/85737078-a192-46a9-b73a-477788765bf6/IMG_6617.jpeg https://www.ptlshope.org/global-ptls-day-2024 daily 0.75 2024-03-12 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/d7091c5a-3b11-409d-83db-7c8a27860ce0/IMG_7524.PNG Global PTLS day 2024 Graphic promoting Potocki-Lupski Syndrome Awareness Day on March 8, 2024, featuring a person's photo, green ribbon symbol, and PTLS Hope Research Foundation logo with hashtag and website listed. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1e6c5ceb-47ca-4420-8047-c9067187180f/IMG_8469.JPG Global PTLS day 2024 Promotional image for International Potocki-Lupski Syndrome Awareness Day on March 8, 2024. Features a baby named Annabelle, 8 months old, with Potocki-Lupski Syndrome. Includes a green awareness ribbon and website link to ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/68b52781-a6c1-4424-88c3-1a3170cb1c75/IMG_7528.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome day, featuring a child smiling on a swing, green gradient background, green awareness ribbon, and text promoting awareness on March 8, 2024. Includes hashtag and website link. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/498392a4-a970-480b-93da-6f7291fcf143/IMG_7534.PNG Global PTLS day 2024 Poster for PTLS Hope Research Foundation promoting Potocki-Lupski Syndrome awareness. Features a child in a blue hooded jacket and mentions "Someone I love has Potocki-Lupski Syndrome." Includes text about International Potocki Lupski Syndrome Awareness Day on March 8, 2024, and displays a green awareness ribbon. Has hashtag #potockilupskisyndromeday and website ptls.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/168cb6e6-f296-4a78-aa6c-0ba865b1aa7c/IMG_7538.PNG Global PTLS day 2024 Graphic promoting Potocki-Lupski Syndrome Awareness Day on March 8, 2024, featuring a photo of a young person sitting in a field, with text about loving someone with Potocki-Lupski Syndrome and a green awareness ribbon. Includes website and hashtag information. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/7c401b17-ecc6-4f98-b3eb-53442a94e3b0/IMG_7928.PNG Global PTLS day 2024 Flyer for Potocki-Lupski Syndrome awareness featuring a family photo, with text about International Potocki-Lupski Syndrome Day on March 8, 2024, and a green awareness ribbon. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/34792623-d779-412e-9594-e0581c49e6b7/IMG_7530.PNG Global PTLS day 2024 Green and white awareness poster for International Potocki-Lupski Syndrome Day on March 8, 2024. Includes a circular photo of a smiling woman with a young man wearing headphones. Text reads "Someone I love has Potocki-Lupski Syndrome" and "Ragnar . 27." Features the PTLS Hope Research Foundation logo and hashtag #potockilupskisyndromeday. Website www.ptlshope.org is also mentioned. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/9b949c9b-e9ed-4000-83b5-0968076e7bf3/IMG_7536.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome with a smiling child in a ball pit, green background, text about syndrome, and PTLS Hope Research Foundation logo. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/dd60329b-5bb0-4af1-b82a-d6fb221fdb7d/IMG_8226.PNG Global PTLS day 2024 Awareness graphic for Potocki-Lupski Syndrome featuring a young boy named Arturo, age 11, with a green ribbon symbol and text promoting International Potocki-Lupski Syndrome Awareness Day on March 8, 2024, by PTLS Hope Research Foundation. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/c5591b37-70df-474d-a5aa-0c05b253d42f/IMG_9191.PNG Global PTLS day 2024 PTLS awareness graphic featuring a child with glasses and curly hair, promoting Potocki-Lupski Syndrome awareness day on March 8, 2024, by PTLS Hope Research Foundation. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/bd988460-eb05-453c-9c21-7ef693ecfe4a/IMG_7518.PNG Global PTLS day 2024 A promotional image for Potocki-Lupski Syndrome awareness day on March 8th, 2024. It features a young child sitting on a couch, wearing pajamas, with a smile. The text includes a message of support for someone with Potocki-Lupski Syndrome and mentions the PTLS Hope Research Foundation with a website link. There's also a green awareness ribbon. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/77577058-66a8-4c9e-a420-fb2fa6ecb3be/IMG_7520.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome featuring a smiling person and an adult, with text highlighting the syndrome's awareness day on March 8, 2024. Includes a green awareness ribbon and the hashtag #potockilupskisyndromeday. The image is from PTLS Hope Research Foundation, featuring the name Blake and the age 17. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/808b2525-72f5-475f-ae4b-101a1c5a41b1/IMG_7526.PNG Global PTLS day 2024 Potocki-Lupski Syndrome awareness poster with a young child holding a gift, a green ribbon symbol, and event details for March 8, 2024. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/cbab71e8-71c9-4899-a1f1-792f61f5c550/IMG_7532.PNG Global PTLS day 2024 A promotional graphic for Potocki-Lupski Syndrome awareness. It features the PTLS Hope Research Foundation logo. The text reads: "Someone I Love Has Potocki-Lupski Syndrome," "International Potocki-Lupski Syndrome awareness day 8th March 2024," and a child named Anuheā, 5, wearing heart-shaped sunglasses. Hashtag: #potockilupskisyndromeday. Website: www.ptlshope.org. A green awareness ribbon is also displayed. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/fd201d9c-66dc-414f-87a4-8165ed25d9b3/IMG_7541.PNG Global PTLS day 2024 Promotional graphic for Potocki-Lupski Syndrome Awareness Day on March 8, 2024, featuring a family photo and a green ribbon symbol, organized by PTLS Hope Research Foundation. Includes hashtags and URL www.ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/f7fe37f9-737f-44df-b077-48c468cbb8c3/IMG_7543.PNG Global PTLS day 2024 PTLS Hope Research Foundation poster for International Potocki Lupski Syndrome Awareness Day, March 8, 2024, featuring a smiling child in pajamas within a heart-themed frame. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/2daf18ff-0b63-46ed-ba50-b6ebf31f04da/IMG_7568.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome with a smiling child, text stating "Someone I love has Potocki-Lupski Syndrome," and date for International Potocki-Lupski Syndrome Awareness Day on March 8, 2024. Website link: www.ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/9524c7ff-771b-4073-81be-023c05b7eb21/IMG_7569.PNG Global PTLS day 2024 Green and blue awareness poster for Potocki-Lupski Syndrome with a photo of a smiling person in a pink coat and white hat holding a snow shovel. Includes text: "Someone I love has Potocki-Lupski Syndrome" and "International Potocki-Lupski Syndrome Awareness Day 8th March 2024." Also shows a green awareness ribbon, the PTLS Hope Research Foundation logo, and the hashtag #potockilupskisyndromeday with website www.ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/979ee276-fba0-4915-9c76-738d0fc07f44/IMG_7570.PNG Global PTLS day 2024 PTLS Hope Research Foundation infographic for International Potocki Lupski Syndrome Awareness Day on March 8, 2024, featuring a smiling child in a blue hoodie with the text 'Someone I love has Potocki-Lupski Syndrome'. Includes the foundation logo and website. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/dd7658ea-ca1b-41db-9005-2c9d0345a61b/IMG_7572.PNG Global PTLS day 2024 A promotional image for PTLS Hope Research Foundation featuring a young girl in a floral dress. Text reads: "Someone I Love Has Potocki-Lupski Syndrome." Includes information about International Potocki-Lupski Syndrome Awareness Day on March 8, 2024, and a green awareness ribbon. A website link is provided: www.ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/571a2f17-1b2d-41cd-9f9b-cec12e5423c1/IMG_7573.PNG Global PTLS day 2024 Image featuring a campaign poster for Potocki-Lupski Syndrome awareness. It includes a smiling toddler and text promoting International Potocki-Lupski Syndrome Awareness Day on March 8, 2024. The poster is created by PTLS Hope Research Foundation and encourages visiting www.ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/9421e8dc-e4cf-4a86-83d9-b7de373a6633/IMG_7574.PNG Global PTLS day 2024 A promotional image for Potocki-Lupski Syndrome awareness. It features a young child eating, with the text 'Someone I love has Potocki-Lupski Syndrome,' 'Marina, 3,' and mentions International Potocki-Lupski Syndrome awareness day on March 8, 2024. Includes a green awareness ribbon and PTLS Hope Research Foundation logo and website. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/349eb66f-ebba-4d1b-9e0d-5d726f266129/IMG_7575.PNG Global PTLS day 2024 Potocki-Lupski Syndrome awareness poster featuring a person sitting in a car, wearing glasses, with text saying, 'Someone I love has Potocki-Lupski Syndrome.' Includes details about International Potocki Lupski Syndrome Awareness Day on March 8, 2024, a green awareness ribbon, and the PTLS Hope Research Foundation logo. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/be9bda4f-3fbe-4fb1-9a4a-2d65c1de6ef8/IMG_7576.PNG Global PTLS day 2024 Awareness poster featuring Potocki-Lupski Syndrome. Includes a photo of a smiling child with glasses and flowers. Text highlights International Potocki-Lupski Syndrome Awareness Day on March 8, 2024. Includes hashtag and website for PTLS Hope Research Foundation. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/20475254-9a52-4f06-b11f-730318e3da1b/IMG_7577.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome with young girl smiling, wearing a 'Barbie' t-shirt. Includes green awareness ribbon, announcement for awareness day on March 8, 2024, and website URL for PTLS Hope Research Foundation. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/b3dae3bd-6623-4d0f-a3fa-e0580c491d01/IMG_7578.PNG Global PTLS day 2024 Promotional image for PTLS Hope Research Foundation, featuring a young man smiling. Text highlights Potocki-Lupski Syndrome awareness day on March 8, 2024, with a green ribbon symbol. Includes website url and hashtag for awareness. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/81fa4e76-3c0a-4521-beec-981a5dadc8bc/IMG_7579.PNG Global PTLS day 2024 Green and blue graphic with a photo of a girl on a beach holding a shell. Text reads "Someone I love has Potocki-Lupski Syndrome," "Willow, 10," and details about Potocki Lupski Syndrome awareness on March 8, 2024. Includes PTLS Hope Research Foundation logo and website www.ptlshope.org." https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/06f2b4cd-e819-4a6a-b524-e9c355727b92/IMG_7580.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome featuring a smiling person in a circle frame. Text on the poster reads: "Someone I love has Potocki-Lupski Syndrome", "Peyton 19", and "International Potocki Lupski Syndrome Awareness Day 8th March 2024". Includes a green ribbon symbol and website link ptls, org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/46d57fdc-89e7-4c4b-8d9d-04d754b35400/IMG_7581.PNG Global PTLS day 2024 Promotional graphic for International Potocki-Lupski Syndrome Awareness Day on March 8, 2024, featuring a photo of two smiling individuals, with text expressing support for someone with Potocki-Lupski Syndrome. It's designed by the PTLS Hope Research Foundation, includes a green awareness ribbon, and lists a website link and hashtag related to the syndrome. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/e2037e0a-eefb-4f90-a396-a76b58ebbc53/IMG_7582.PNG Global PTLS day 2024 Awareness graphic for Potocki-Lupski Syndrome featuring a smiling woman and child, with text about Potocki-Lupski Syndrome Awareness Day on March 8, 2024, promoted by PTLS Hope Research Foundation. Includes a green ribbon and hashtags for awareness. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/83b59117-8fd4-464b-995f-112f5d86e65c/IMG_7583.PNG Global PTLS day 2024 A green and blue graphic for International Potocki Lupski Syndrome Awareness Day on March 8, 2024, featuring the PTLS Hope Research Foundation's logo and a photo of a smiling person wearing a colorful hat, holding a white rabbit. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/3b5f2ad8-30fd-4612-9791-1b5c8ccb21e2/IMG_7584.PNG Global PTLS day 2024 Promotional image for PTLS Hope Research Foundation with a photo of two smiling people. Text includes "Someone I Love Has Potocki-Lupski Syndrome," "International Potocki Lupski Syndrome awareness day 8th March 2024," and references to "Austin, 14" and "#potockilupskisyndromeday." The website ptlscope.org is also mentioned. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/b5c09489-8e63-40aa-acb9-3b430e2c1e82/IMG_7587.PNG Global PTLS day 2024 A poster for PTLS Hope Research Foundation featuring a person in a red shirt seated in a vehicle. The text highlights Potocki-Lupski Syndrome awareness and includes a green ribbon symbol. It mentions International Potocki Lupski Syndrome Awareness Day on March 8, 2024, with hashtags and a website link to ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/e50e64ec-3ff3-485f-8539-2df91c184cf7/IMG_7588.PNG Global PTLS day 2024 Awareness poster with a smiling girl promoting International Potocki-Lupski Syndrome awareness day on March 8, 2024. Includes text: 'Someone I love has Potocki-Lupski Syndrome' and '#potockilupskisyndromeday'. Features the PTLS Hope Research Foundation logo. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/4eb50fd1-731b-42a0-a7b3-9f2d209ca341/IMG_8617.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome featuring a child wearing heart-shaped sunglasses and a red shirt. Text reads "Someone I Love Has Potocki-Lupski Syndrome," and mentions International Potocki-Lupski Syndrome Awareness Day on March 8, 2024. Includes a green ribbon and the PTLS Hope Research Foundation logo, with the hashtag #potockilupskisyndromeday and website www.ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/ccb094f5-f70d-4741-8aaa-617f944a4349/IMG_7589.PNG Global PTLS day 2024 PTLS awareness poster with green background featuring a family photo, promoting Potocki-Lupski Syndrome awareness day on March 8, 2024. Includes PTLS Hope Research Foundation logo and hashtag #potockilupskisyndromeday. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/6f903c1b-7593-42aa-bf52-b9d30084ff46/IMG_7590.PNG Global PTLS day 2024 Image promoting Potocki-Lupski Syndrome awareness day on March 8, 2024, with a photo of a smiling girl making a peace sign. Includes text 'Someone I love has Potocki-Lupski Syndrome' and '#potockilupskisyndromeday'. Website: www.ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/27a77f7d-8105-40e1-bd1b-8c8764684eb9/IMG_7592.PNG Global PTLS day 2024 Green and blue gradient graphic with a photo of a smiling woman and child, promoting Potocki-Lupski Syndrome awareness. Text reads: 'Someone I love has Potocki-Lupski Syndrome,' 'International Potocki Lupski Syndrome awareness day 8th March 2024,' hashtag '#potockilupskisyndromeday,' and website 'www.ptlshope.org'. A green awareness ribbon is shown. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/c342dabc-1de4-4732-9620-a0f2ed2e798a/IMG_7647.PNG Global PTLS day 2024 PTLS Hope Research Foundation graphic featuring Potocki-Lupski Syndrome awareness. Includes text "Someone I love has Potocki-Lupski Syndrome." Displays a green awareness ribbon and mentions "International Potocki-Lupski Syndrome awareness day 8th March 2024." Shows a person standing in front of greenery and flowers. Website link: www.ptlshope.org https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/4ca0d64d-a781-49be-8d46-b544c5ab2c99/IMG_7648.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome featuring information about the awareness day on March 8th, 2024, a person's photo, and a green awareness ribbon, designed by PTLS Hope Research Foundation. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/e72ec64b-b8ad-4661-97d9-01564cc8e599/IMG_7650.PNG Global PTLS day 2024 Image of two women smiling within a circular frame on a green and blue gradient background. Text reads, 'SOMEONE I LOVE HAS POTOCKI-LUPSKI SYNDROME,' with a signature 'Lola. 13.' Includes text about International Potocki-Lupski Syndrome Awareness Day on March 8, 2024, and website 'ptlshope.org.' A green awareness ribbon is present. Hashtags and logo of PTLS Hope Research Foundation are included. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/452d7773-e9f2-4838-b840-789ed41f5e8e/IMG_7651.PNG Global PTLS day 2024 Promotional image for Potocki-Lupski Syndrome awareness featuring a person named Jade, age 19, with text about the PTLS Hope Research Foundation and a 2024 awareness day on March 8th. Includes a green ribbon and the hashtag #potockilupskisyndromeday. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/529318d2-a321-4fb0-8ba2-da57438dfb76/IMG_7652.PNG Global PTLS day 2024 Potocki-Lupski Syndrome awareness poster featuring two people smiling, with text promoting Potocki-Lupski Syndrome awareness day on March 8, 2024, and a green awareness ribbon. Includes website and hashtag details. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1f002ef0-12b2-4224-8aea-037307e36df3/IMG_7653.PNG Global PTLS day 2024 A digital poster for Potocki-Lupski Syndrome awareness. It features a smiling child in a jacket walking on a path. The poster is green and blue with a green ribbon symbol, and includes text about Potocki-Lupski Syndrome awareness day on March 8th, 2024. The website "www.ptlshope.org" is displayed at the bottom. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/46820234-ab8f-40a2-a0fb-03f1a36c7dae/IMG_7654.PNG Global PTLS day 2024 Awareness poster for International Potocki-Lupski Syndrome Day on March 8, 2024, featuring a photo of two people sitting closely, one kissing the other's forehead. Text reads 'Someone I love has Potocki-Lupski Syndrome' and includes the hashtag #potockilupskisyndromeday and website ptlshope.org. A green ribbon symbol is also displayed. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/8ed6a456-a0df-4a1d-bf99-5f1048ec6d37/IMG_7656.PNG Global PTLS day 2024 Image promoting Potocki-Lupski Syndrome awareness with a green gradient background. Text reads, 'Someone I love has Potocki-Lupski Syndrome. Ann Iren, 40.' Includes information about International Potocki-Lupski Syndrome Awareness Day on March 8, 2024, and a website link to www.ptlshope.org. Features a green awareness ribbon and a portrait of a woman wearing glasses and a pink hoodie. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/7ea54379-7a6a-423d-b059-c95fb7ebaaa9/IMG_7659.PNG Global PTLS day 2024 Poster for Potocki-Lupski Syndrome awareness featuring a person with short hair giving a thumbs up while sitting near a glass enclosure with a lion. Includes text about International Potocki-Lupski Syndrome Awareness Day, March 8, 2024. Hashtags and website URL for more information. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/5df952e2-64cc-4c74-9b09-f34083e4e868/IMG_7674.PNG Global PTLS day 2024 Potocki-Lupski syndrome awareness poster featuring a young woman holding a red book outdoors, with text highlighting International Potocki Lupski Syndrome Awareness Day on March 8, 2024. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/974b88f7-080a-4567-ad1b-48c903c2997d/IMG_7675.PNG Global PTLS day 2024 Image of a girl with glasses in a circular frame; text reads 'Someone I love has Potocki-Lupski Syndrome' with information about International Awareness Day on March 8, 2024, and a website link to ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/3c5a1699-bb6c-480b-b587-601cd62cd6b4/IMG_7685.PNG Global PTLS day 2024 Potocki-Lupski Syndrome awareness poster featuring a young girl smiling in a garden, with text indicating "Someone I Love Has Potocki-Lupski Syndrome," and information about International Potocki-Lupski Syndrome Awareness Day on March 8, 2024. Includes PTLS Hope Research Foundation logo and website. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/395df524-082f-4e70-a56e-73d512bd26ce/IMG_7686.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome featuring child in car, wearing sunglasses, with green gradient background, green ribbon, and text promoting International Potocki Lupski Syndrome Awareness Day on March 8, 2024, website link www.ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/c03d8ff0-d875-4cf5-96e7-07c2c2befe63/IMG_7687.PNG Global PTLS day 2024 Green flyer for Potocki-Lupski Syndrome awareness featuring a smiling girl wearing a fur jacket. Includes text about International Potocki Lupski Syndrome Awareness Day on March 8, 2024, organized by PTLS Hope Research Foundation, with hashtags #potockilupskisyndromeday and website link www.ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/f2f3e7e8-b8b3-4c1e-9a3f-349d878ea0d6/IMG_7689.PNG Global PTLS day 2024 Flyer promoting International Potocki-Lupski Syndrome Awareness Day on March 8, 2024, featuring a smiling person in a red outfit and black backpack, sitting on a bench. It includes the PTLS Hope Research Foundation logo, a green awareness ribbon, and the tag #potockilupskisyndromeday. Website link: www.ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/c3a3ee55-b267-4a0d-8dc2-59efdc2a6935/IMG_7696.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome featuring a child sitting in a red slide. Includes green ribbon, PTLS Hope Research Foundation logo, and text about International Potocki Lupski Syndrome Awareness Day on March 8, 2024. Website link: www.ptlshope.org. Hashtag: #potockilupskisyndromeday. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/e44990d8-886f-4968-b381-81dfedce26f4/IMG_7697.PNG Global PTLS day 2024 International Potocki-Lupski Syndrome awareness day poster with a child smiling in a field. Includes text about Potocki-Lupski Syndrome and a green awareness ribbon. Visit www.ptlshope.org for more information. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/f36edeca-62b2-4d69-89b2-caf7426c9799/IMG_7698.PNG Global PTLS day 2024 Awareness poster for Potocki-Lupski Syndrome Day, featuring a young person in a blue hoodie, with text promoting the event on March 8, 2024, organized by PTLS Hope Research Foundation. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/3a743cab-5300-4a32-812a-5e37fb3db26e/IMG_7703.PNG Global PTLS day 2024 Potocki-Lupski Syndrome awareness poster featuring a young person. Text includes "Someone I love has Potocki-Lupski Syndrome," and information about International Potocki-Lupski Syndrome Awareness Day, March 8, 2024. Includes hashtags and a website: ptlshope.org. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/49614d81-4707-4662-98b6-1374537195a0/IMG_7708.PNG Global PTLS day 2024 Promotional graphic for International Potocki Lupski Syndrome awareness day, March 8, 2024, featuring a smiling young girl named Ella, age 8. The graphic includes a green ribbon, text supporting those with the syndrome, and a website URL for PTLS Hope Research Foundation. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/55662ab7-919b-403d-9f00-63fc4deaa6e4/IMG_7710.PNG Global PTLS day 2024 Green and blue awareness poster for Potocki-Lupski Syndrome featuring a young child sitting on a chair. Includes the text "Someone I love has Potocki-Lupski Syndrome," "International Potocki Lupski Syndrome Awareness Day 8th March 2024," "Lucy 2," and website link "www.ptlshope.org." Green ribbon symbol present. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/a98a2a87-2bde-4e98-9ff7-36db5bec6688/IMG_7752.PNG Global PTLS day 2024 A promotional image for PTLS Foundation featuring a young person named Austin and their dog on a couch. Text reads: 'Someone I love has Potocki-Lupski Syndrome. International Potocki Lupski Syndrome awareness day 8th March 2024. #potockilupskisyndromeday www.ptlshope.org' with a green awareness ribbon. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/79c83a84-d4bd-4bd2-bb33-6660ac168465/IMG_7753.PNG Global PTLS day 2024 Image promoting Potocki-Lupski Syndrome awareness with a young girl making a peace sign, accompanied by text highlighting International Potocki-Lupski Syndrome Awareness Day on March 8, 2024, and a green awareness ribbon. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/dbcc0b24-053a-4acd-a411-c527a6ce7e36/IMG_7802.JPG Global PTLS day 2024 Poster for Potocki-Lupski Syndrome awareness featuring a young person with dark curly hair, seated and smiling. The text encourages awareness about the syndrome, states "Someone I love has Potocki-Lupski Syndrome," and mentions International Potocki Lupski Syndrome Awareness Day on March 8, 2024. A green ribbon and the PTLS Hope Research Foundation logo are included, along with a website URL and hashtag. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/afb843c8-40a9-4137-b694-0f7c957183fa/IMG_7861.PNG Global PTLS day 2024 PTLS awareness graphic featuring a young man smiling with a text overlay stating "Someone I love has Potocki-Lupski Syndrome." Includes event details: "International Potocki-Lupski Syndrome awareness day 8th March 2024." Green ribbon symbol and PTLS Hope Research Foundation logo are displayed. Website: www.ptlshope.org https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/5b3b8219-b633-49a9-8696-4b5cb6ebead6/IMG_7863.PNG Global PTLS day 2024 Poster for Potocki-Lupski Syndrome awareness, featuring a smiling child holding a stuffed animal. Includes text about International Potocki-Lupski Syndrome Awareness Day on March 8, 2024, and the PTLS Hope Research Foundation logo. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/61746676-7328-4500-bf82-b36369f6e8f0/IMG_9050.PNG Global PTLS day 2024 A promotional graphic for Potocki-Lupski Syndrome awareness featuring a young person wearing glasses and a hat, with text promoting the international awareness day on March 8, 2024. The background includes the PTLS Hope Research Foundation logo and a green ribbon symbol. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/e8d8b78e-1b35-4306-b305-84c941324f95/IMG_9099.PNG Global PTLS day 2024 Awareness poster for International Potocki-Lupski Syndrome Day, March 8, 2024, featuring a smiling child and green ribbon, with PTLS Hope Research Foundation logo. https://www.ptlshope.org/fundraising-stars daily 0.75 2024-09-09 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/2f066e6b-4b83-43f9-8d89-11838034aaf2/73443e2f-b65f-496b-b374-1f03fd5b592b.JPG https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/597f57a7-e1b6-4714-8ce0-ff7a8c439f8e/IMG_7669.JPG https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/41faf7e2-1f41-4a71-8042-4d9e33ea1107/IMG_9709.PNG https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/837510e9-2537-4de7-a76b-d071fd23751a/IMG_8230.jpg https://www.ptlshope.org/rai1-gene daily 0.75 2025-03-28 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1708678965961-7YFY2J0A50CMTI3T08NA/image-asset.jpeg RAI1 gene info https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/d1687efa-38b1-40f2-aa12-c3b1f3ada73c/shutterstock_1966890751.jpg RAI1 gene info https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/e16cba56-181a-4757-9cf3-e6a7ab0474d6/shutterstock_2149947783.jpg RAI1 gene info https://www.ptlshope.org/facebook-parent-community daily 0.75 2025-03-28 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1708950112795-IRECS67OEPLGMDYBWABE/image-asset.jpeg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1708950141536-IQX51Q1K04FQ1Q0ECI11/image-asset.jpeg https://www.ptlshope.org/awareness-news daily 0.75 2025-03-28 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https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/b8fa0088-191a-4483-b28d-1db4f2c92d40/ac7600ea-cb14-48d3-9c28-07b94618e921.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/5f0f49a2-89f6-40d9-b7c8-b09101a91dee/9F445325-9878-473A-B4E7-521CAEFD71F0.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/fb99e77d-38ab-4ba7-a066-1543fc61535d/DAE9BB7A-A9FB-49DC-ACF8-21B1C51A84EF.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/8896ee7d-ec12-4482-955c-a80c1dfea431/E43C299B-8DF0-40A0-B2E0-AE177B98118B.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/303ca2a5-9cdd-479a-9ddd-b6f0c6ef5b77/8CDD7ADA-680C-4CD6-8B13-59E048DA9D7B.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/d5bd1fa8-b1db-4711-9e2c-d6ea4953bb69/FCCF6690-6ADA-45A0-B661-45D55DA94F16.jpg https://www.ptlshope.org/merch-faqs daily 0.75 2026-03-03 https://www.ptlshope.org/join-our-team daily 0.75 2025-03-28 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1711112622160-UDA1SJYXP0WEEPDOLGWV/image-asset.jpeg https://www.ptlshope.org/our-team-doctors-and-scientists daily 0.75 2025-03-28 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/54cd8f18-ed6c-4da1-b90c-db126fb4dd66/Potocki+Photo+January+2022.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/f0c7e381-e57c-4ca4-8d93-0af702b275e8/James-is-a-pioneer-1024x576.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/f039a9ab-94d2-4c14-8c4d-e220d5b148f3/IMG_0058.PNG https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/9253e8b2-b213-48e1-a2fd-4df939543b49/Pehlivan_Image.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/b38445ff-87af-466d-bb62-c4a1e8540fbb/IMG_0210.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/07dd66e1-57b3-4860-9b21-0892f2df85af/878b053f-db45-4919-8900-be1c82c1f69c.JPG https://www.ptlshope.org/why-research daily 0.75 2024-04-08 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1712576024499-Y7QS126ZFQ0MGU0P3JAO/IMG_0387.jpg Why Research? Informational graphic by PTLS Hope Research Foundation highlighting the need for improved diagnosis and treatment of rare diseases, which often lack effective tools due to less extensive study compared to common conditions. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1712576036895-ONAIULNJ0DG532PSJJE4/IMG_0388.jpg Why Research? PTLS Hope Research Foundation informational graphic discussing disease mechanisms, emphasizing insights provided by rare diseases into biological processes relevant to both rare and common diseases. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1712576045186-K3CC6Y3FS336D3THXX9J/IMG_0389.jpg Why Research? PTLS Hope Research Foundation logo with text about addressing unmet medical needs for individuals with rare diseases. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1712576069258-WT1E85X7SGJBE727P4FQ/IMG_0390.jpg Why Research? PTLS Hope Research Foundation document discussing contribution to scientific knowledge through rare disease research in genetics, molecular biology, and disease pathology. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1712576129564-SYMCI1BY6G66CEDZNTRQ/IMG_0391.jpg Why Research? Poster from PTLS Hope Research Foundation discussing drug development and innovation related to rare diseases, highlighting opportunities and investment by pharmaceutical companies. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1712576139316-P8SM1IY74VSLQL1I1JY0/IMG_0392.jpg Why Research? PTLS Hope Research Foundation logo with text explaining its mission to support patients and families through rare disease research. https://www.ptlshope.org/hidden-disabilities-sunflower daily 0.75 2024-04-19 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/9db1f8de-7ab3-4abc-b22c-2958ff6d5eae/A5_leaflets_B2C.jpg Hidden Disabilities Sunflower Collage of people wearing green sunflower lanyards or caps and a green hoodie with 'Making the Invisible Visible' text. Banner below explains the sunflower symbol signifies hidden disabilities and offers support. Includes website link and QR code for more information. https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/d70c4dac-523e-4a6e-b761-7d10ce22488c/4beef956-099a-4c76-bcf3-e8784ac0f33a.JPG Hidden Disabilities Sunflower Kai's mom Said " The sunflower lanyard has been great for travelling, staff & other people give him space, extra time & make any adjustments they can for him. It helps people understand & I wouldn't travel without it now". https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/77db8cc7-611a-47f1-af39-8c59d517df7e/HD+sunflower+badge+1.png Hidden Disabilities Sunflower wear the sunflower to show you have a Hidden Disability https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/4d015c14-a9f8-4e79-9f24-eef0f0c2ec12/Hidden_Disabilities_2023.jpg Hidden Disabilities Sunflower Some facts about hidden disabilities https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/f1f8bf4d-35e5-43e2-89b1-a1b5eb12d363/IMG_3081+copy+2.jpeg Hidden Disabilities Sunflower Wrens mom said "travelling with our sunflower lanyard at airports made the whole process so much easier and less stressful, everyone was so helpful & understanding!" https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/c73dee65-88cf-4b8e-aa36-3f09daf92682/Icons_poster_2.jpg Hidden Disabilities Sunflower Visual icons to look out for https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/3b055d7c-608a-4917-8c85-b8b0b4f54f76/hd+sunflower+2.png Hidden Disabilities Sunflower Show support & understanding for those with hidden disabilities https://www.ptlshope.org/get-involved daily 0.75 2025-03-28 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1712617516513-LW8ZQRFDJR4CS3A52HGD/IMG_0595.jpeg https://www.ptlshope.org/team-parents daily 0.75 2025-03-28 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/86569a8c-055c-4cff-851d-92e81860dd15/IMG_E5975.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1305d85d-c0b6-4de6-bd42-60f74bf9069b/IMG_0689.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/5f6ba777-97b0-4afa-8998-f191653529ce/IMG_7716.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/57682bdc-b0b1-4cde-8c0f-bfc87d2786ac/IMG_5935.jpg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/03535a2e-be8e-4a52-aa22-d1a710c0056c/20240605_083024+%281%29.jpg https://www.ptlshope.org/therapies-for-ptls daily 0.75 2024-05-28 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1716286600688-BQ1DAPQPGEE2HXPN589K/image-asset.jpeg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1716288019000-4ST06ZLRA663ADX9QWF8/image-asset.jpeg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1716287703453-MA2AZ1OF0MACW3W8QNQJ/image-asset.jpeg https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1716287822497-CL7IO3EZON7HF6212L7U/image-asset.jpeg https://www.ptlshope.org/stories-kai daily 0.75 2024-08-27 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/a5d1e786-9a6e-4c48-b908-5d7ac692467d/PHOTO-2024-08-27-13-18-25.jpg 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https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1615225322403-8M32U1NK41JYCCJQCWP7/Rectangle+25.jpg Donate https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1615225298850-6RK21Y7YG7VPMPS9NQT9/Rectangle+27.jpg Donate https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1615225322403-8M32U1NK41JYCCJQCWP7/Rectangle+25.jpg Donate https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1615225298850-6RK21Y7YG7VPMPS9NQT9/Rectangle+27.jpg Donate https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1615225259531-0HK0SKZ3FR5VOEIG39FB/Rectangle+26.jpg Donate https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/21b0d0d9-32ad-488f-86b4-9e06d592f61d/IMG_3848.JPG https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/a4eafedc-821c-4c32-9183-ab9a6f161024/PHOTO-2024-08-27-13-18-26.jpg 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https://www.ptlshope.org/17forhope daily 0.75 2025-02-04 https://www.ptlshope.org/merch-shop-now daily 0.75 2024-04-22 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1712457681435-N4EKVL0IRID2WKOAPW7K/MASTER_FILES+36.png https://www.ptlshope.org/merch-shop-now/accessories monthly 0.5 2024-04-14 https://www.ptlshope.org/merch-shop-now/bundles monthly 0.5 2024-04-08 https://www.ptlshope.org/merch-shop-now/clothes monthly 0.5 2026-03-06 https://www.ptlshope.org/merch-shop-now/clothes/hoodies monthly 0.5 2025-02-24 https://www.ptlshope.org/merch-shop-now/clothes/shop-all monthly 0.5 2026-03-06 https://www.ptlshope.org/merch-shop-now/clothes/sweatshirts monthly 0.5 2025-02-24 https://www.ptlshope.org/merch-shop-now/clothes/t-shirts monthly 0.5 2026-03-06 https://www.ptlshope.org/merch-shop-now/hope-merch monthly 0.5 2026-03-06 https://www.ptlshope.org/merch-shop-now/logo-merch monthly 0.5 2026-03-06 https://www.ptlshope.org/merch-shop-now/personalised-items monthly 0.5 2024-04-08 https://www.ptlshope.org/merch-shop-now/youth monthly 0.5 2025-02-24 https://www.ptlshope.org/merch-shop-now/youth/hoodies monthly 0.5 2025-02-24 https://www.ptlshope.org/merch-shop-now/youth/shop-all monthly 0.5 2025-02-24 https://www.ptlshope.org/merch-shop-now/youth/sweatshirts monthly 0.5 2025-02-24 https://www.ptlshope.org/merch-shop-now/youth/t-shirts monthly 0.5 2025-02-24 https://www.ptlshope.org/merch-shop-now/p/ptls-day-coloring-page monthly 0.5 2025-03-05 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/3af4a2ac-035e-4406-a7fc-e917f9f6910f/Screenshot+2025-03-04+at+4.14.46%E2%80%AFPM.png PTLS Hope Merch Shop - PTLS Day Coloring Page https://www.ptlshope.org/merch-shop-now/p/fbtiufz6cg54gvxooz465nei5gheuu monthly 0.5 2024-05-02 https://images.squarespace-cdn.com/content/v1/65673bcc89c6d91f2ef5eb6a/1714622613730-LQQZC0AHZN92F7PLEVV0/313C2A89-CEF4-4AD9-86E8-7B5B4AA5CBFF.jpeg PTLS Hope Merch Shop - PTLS Hope Blue Ink Pens 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